Prayers for my best friend and hetero-lifemate



  • My best pal and who I jokingly call my hetero-lifemate (ala Jay and Silent Bob Strikes Back) had a kid about a month ago. She was puking a bit and not gaining much weight so they took her to the doc's. They tested and tested for days and finally found she wasn't puking and she was gaining weight! Yay!!!

    Then, just as a precaution, they took a sweat sample for the lab and found out she has Cystic Fibrosis. What a blow.. Everyone is devastated. I haven't been able to drink or eat because I've just been a snot ball of tears, and I was doing relatively good until I saw my best friend (the most "non-cryingest" SOB on Earth) absolutely in a pile of his own tears and liver bile.

    If anyone has any comforting advice or.. relative information (good or bad), it'd be appreciated in further understanding this for my buddy's sake.

    Thanks much.

    • Robb


  • I can only imagine how difficult it is to be in such a situation as a parent. But tell them not to despair. The prognosis for cystic fibrosis has improved significantly in the last decades, and it's been diagnosed in her at such an early age. I'm sure that with such caring parents and the right precautions, she can lead a long and fulfilled life.

    I wish them all the best.



  • I'm a budding psychologist with emphasis in social psychology, so the nitty gritty specifics of physiological anomalies is hardly my thing, but what Snakes said is true. Rapid advancements in the field of medicine combined with catching on to her condition so early is a light of hope. My sincerest condolences for your broseph and his family.

    Tell him you have a legion of nerdy roleplayers who are wishing him and his beautiful daughter well.



  • My thoughts are with you and your buddy and family.



  • Thanks all. I don't have any news or updates, but I guess it's good that it was caught so early on. Guess more info to come as we go along.



  • Well, I was just told today that someone at the hospital somewhere messed up the tests and that there is NO Cystic Fibrosis! Amazingly wonderful news, but someone's going to hang at that hospital.



  • WHEW! That's freaking awesome, Penguin!

    But yeah. Someone just lost their career.



  • Hell of a mis-diagnosis.



  • @Gorga469:

    Hell of a malpractice.

    Fixt



  • They should base some sort of soap around that sort of malpract- Oh wait. House.

    Glad it's all okay



  • Oh, that's good to know, death is just one of the worst things..



  • That's wonderful news, Penguin! 😃



  • Wow bud, I started to read this and was heartbroken. Talk about a happy ending to a forum story though!

    Hope all is well for you. Don't be a stranger!

    Geek



  • Awesome news Penguin! Hope everything works out well.


  • Storyteller [DM]

    Mistakes happen. I am glad the problem is dealt with, for your and your friends sakes. 🙂



  • @Dr.Penguin:

    Well, I was just told today that someone at the hospital somewhere messed up the tests and that there is NO Cystic Fibrosis!

    Wow! Someone really special was praying for the little girl then! Wonderful news!

    @Dr.Penguin:

    Amazingly wonderful news, but someone's going to hang at that hospital.

    Uhm… let me be a bit OFF-TOPIC. I'd appriciate, Penguin, if you read it. Others don't even have to.
    I think this well-spread western attitude makes it very hard for doctor to work. There are certain things a doctor would actually -try- to help you, but he won't when he fears the consequences.
    Everyone makes mistakes, and yeah, he's taken a job where a mistake can cost the life of someone. I think it's quite a brave thing to do, and there is no need to ruin someone's life when there is such a great opportunity to be awfully happy.
    That isn't what people were praying for, either. I think.
    And... I really don't mean to be offensive. Or anything bad. I was a victim for something similar myself, and I'm still content with my decision not taking any legal actions.



  • @AronFF:

    Uhm… let me be a bit OFF-TOPIC. I'd appriciate, Penguin, if you read it. Others don't even have to.
    I think this well-spread western attitude makes it very hard for doctor to work. There are certain things a doctor would actually -try- to help you, but he won't when he fears the consequences.
    Everyone makes mistakes, and yeah, he's taken a job where a mistake can cost the life of someone. I think it's quite a brave thing to do, and there is no need to ruin someone's life when there is such a great opportunity to be awfully happy.
    That isn't what people were praying for, either. I think.
    And... I really don't mean to be offensive. Or anything bad. I was a victim for something similar myself, and I'm still content with my decision not taking any legal actions.

    I understand that and agree, most of the time.

    In this case, to 100% test for Cystic Fibrosis, the baby is given a sweat test, the mother has her blood tested for part of the carrier code, and the father has his blood tested for the other part of the carrier code. All three have to come back positive for the baby to have Cystic Fibrosis. It's not really a test where things can "misfire," if you know what I mean. It's pretty a "golden standard" test for CF. They were told that yes, the mother and father had the carrier genes, and yes, the baby's sweat tested positive for CF.

    When they were referred to a doctor that specializes in Cystic Fibrosis only, he looked at the paperwork, the labs, and said that he had no idea why the doctor they came from thought they had CF. Neither of them are carriers, the baby didn't have it either, according to the labs and the paperwork. So he retested them himself. Still the same results, no CF. Which means the doctor that referred them on to the CF specialist was either A.) cruel, or B.) uneducated.

    I still haven't heard back from him, but in a situation like that.. I'd be pretty pissed. It makes me wonder if some other poor family didn't get told that their child was CF-free when in fact the child had CF.

    Anyway, I agree with you mostly that patients shouldn't be so sue happy with doctors, especially since it's called "a practice" for a reason. However, this isn't like someone telling you "Oh, your child will be cross-eyed until corrective surgery" or "Your child has asthma but will lead a perfectly normal life." This is like someone telling you "Your child is going to die anywhere from next month to next year to when she's about 25." You know, people with CF don't have a great life expectancy and even today, when medicine is fantastic, it's one of those things we just don't know much about yet. No, this is much more serious, something along the lines of "Your child has pancreatic cancer." It's not a joking matter, and certainly not a light little "whoops." Several families were devastated for over a week. Two sets of grandparents, a set of great grandparents, the parents themselves, four sets of aunts and uncles, two sets of great aunts and uncles, and not to mention all of his close friends and their families (and if my parents were crying and upset over this, I imagine the rest of his friends' families were as well). That's a whole lot of grief for a mistake this big. I'm not sure that I'd want to sue for "justice" or sue to make sure that doctor doesn't hurt anyone else so bad.

    Anyway, it's not for me to decide and I thank the Lord, and all of you guys for praying, that this turned out okay! 🙂



  • Always looking out for my birdbro.



  • Well, thanks reading and considering my thoughts. Even if it isn't your decision.


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